{"id":32116,"date":"2024-06-25T18:20:56","date_gmt":"2024-06-25T18:20:56","guid":{"rendered":"https:\/\/caseyfamilyv2.wpengine.com\/medically-complex-children\/"},"modified":"2026-08-04T22:53:23","modified_gmt":"2026-08-04T22:53:23","slug":"ninos-con-afecciones-medicas-complejas","status":"publish","type":"post","link":"https:\/\/www.casey.org\/es\/medically-complex-children\/","title":{"rendered":"\u00bfLas lagunas en los datos afectan negativamente a los ni\u00f1os con necesidades m\u00e9dicas complejas?"},"content":{"rendered":"<div class=\"content-section light fresh-text single wp-block-fresh-text backgrounds-and-margins-aware-block margin-top margin-bottom\">\n <div class=\"container mx-auto px-5\">\n\n \n \n <!-- The CTA is moved up next to the title when in the Head Section style -->\n \n  <div class=\"callout\"><p>This summary synthesizes findings from a single research study, <em><a href=\"https:\/\/www.sciencedirect.com\/science\/article\/abs\/pii\/S0145213423005884\" target=\"_blank\" rel=\"nofollow noreferrer noopener\">A gap in the data: Defining, identifying, and tracking children with medical complexity in the child welfare system<\/a><\/em><\/p>\n<\/div>\n \n \n <!-- conversly to above, we need to not show the CTA here if it's the Head Section style -->\n  <\/div>\n<\/div>\n\n\n<div class=\"content-section light fresh-text single wp-block-fresh-text backgrounds-and-margins-aware-block margin-top margin-bottom\">\n <div class=\"container mx-auto px-5\">\n\n \n   <h2>What can we learn from this study?<\/h2>\n  \n <!-- The CTA is moved up next to the title when in the Head Section style -->\n \n  <div class=\"callout\"><p><!-- wp:heading --><\/p>\n<p><!-- \/wp:heading --><!-- wp:paragraph -->About 10% of the nearly 400,000 children in foster care in the United States are considered medically complex. Children with medical complexity are defined as those with high healthcare needs, at least one chronic condition that is severe and associated with fragility, functional limitations, and high healthcare utilization. Yet information is sparse about services provided to children with medical complexity who are in the child welfare system. Studies show that children with medical complexity who are in foster care are less likely to achieve permanency, tend to remain in out-of-home care longer, and are more likely to be in congregate placements. This study provides insight into what the child welfare system currently is doing to support these children, and what might be done to improve services and outcomes.<\/p>\n<\/div>\n \n \n <!-- conversly to above, we need to not show the CTA here if it's the Head Section style -->\n  <\/div>\n<\/div>\n\n\n<div class=\"content-section light fresh-text 3060 is-style-3060 wp-block-fresh-text backgrounds-and-margins-aware-block back-warm-ceramic margin-top margin-bottom padding-top padding-bottom\">\n <div class=\"container mx-auto px-5\">\n\n \n   <h2>Study details<\/h2>\n  \n <!-- The CTA is moved up next to the title when in the Head Section style -->\n \n  <div class=\"callout\"><ul>\n<li><strong>Population:<\/strong> Child protection agencies in 28 states and two major cities (out of 38 agencies contacted for the study)<\/li>\n<li><strong>Data sources:<\/strong> Survey responses<\/li>\n<li><strong>Methodology:<\/strong> Surveys distributed electronically; descriptive statistical analysis<\/li>\n<li><strong>Dates:<\/strong> Between June and November 2022<\/li>\n<\/ul>\n<p class=\"note\"><strong>Citation:<\/strong> Chung, J., Pecora, P. J., Sinha, A., Prichett, L., Lin, F., &amp; Seltzer, R. R. (2024). A gap in the data: Defining, identifying, and tracking children with medical complexity in the child welfare system. <em>Child Abuse &amp; Neglect, 147<\/em>, 106600. doi:<a href=\"https:\/\/www.sciencedirect.com\/science\/article\/abs\/pii\/S0145213423005884\" target=\"_blank\" rel=\"nofollow noreferrer noopener\">10.1016\/j.chiabu.2023.106600<\/a><\/p>\n<\/div>\n \n \n <!-- conversly to above, we need to not show the CTA here if it's the Head Section style -->\n  <\/div>\n<\/div>\n\n\n<div class=\"content-section light fresh-text single wp-block-fresh-text backgrounds-and-margins-aware-block margin-top margin-bottom\">\n <div class=\"container mx-auto px-5\">\n\n \n   <h2>What are the critical findings?<\/h2>\n  \n <!-- The CTA is moved up next to the title when in the Head Section style -->\n \n  <div class=\"callout\"><p><!-- wp:heading --><\/p>\n<p><!-- \/wp:heading --><!-- wp:paragraph -->This analysis revealed:<\/p>\n<ul class=\"wp-block-list\">\n<li><strong>Child protection agencies lack a standardized definition or reliable way to identify children with medical complexity within their data systems.<\/strong> Nearly half of the agencies (47%) indicated that they did not have a clear definition. Having a standardized definition is a critical step to improving services.<\/li>\n<li><strong>Identifying children with medical complexity within current data systems is challenging.<\/strong> A majority of the agencies (70%) reported difficulty in identifying and storing information about children with medical complexity due to missing or inconsistent data-recording fields. Adding a required field to identify these children will help improve tracking and assessment of service outcomes.<\/li>\n<li><strong>Caseworkers require training to identify children with medical complexity. <\/strong>About three-quarters of agencies (73%) reported that caseworkers are not adequately trained to identify children with medical complexity. While some agencies rely on medical professionals, specialized training for caseworkers is vital to ensure they can appropriately determine and track children&#8217;s medical complexities when medical professionals are unavailable to assist.<\/li>\n<\/ul>\n<ul class=\"wp-block-list\">\n<li style=\"list-style-type: none;\"><\/li>\n<\/ul>\n<\/div>\n \n \n <!-- conversly to above, we need to not show the CTA here if it's the Head Section style -->\n  <\/div>\n<\/div>\n\n\n<div class=\"content-section light fresh-text single wp-block-fresh-text backgrounds-and-margins-aware-block margin-top margin-bottom\">\n <div class=\"container mx-auto px-5\">\n\n \n   <h2>Why is this important for our work?<\/h2>\n  \n <!-- The CTA is moved up next to the title when in the Head Section style -->\n \n  <div class=\"callout\"><p><!-- wp:heading --><\/p>\n<p><!-- \/wp:heading --><!-- wp:paragraph -->Placement and permanency outcomes among children in foster care with medical complexities are generally poorer than their peers in foster care who do not have medical complexities. To enhance services and improve outcomes for these children, there is a need to develop a standardized approach to defining, identifying, and tracking children with medical complexity within child protection agencies, including cross-collaboration with medical providers and other relevant stakeholders. Once children with medical complexity are adequately identified in the system, future research can collect population-level data and provide recommendations for best practices and policies.<\/p>\n<p><!-- \/wp:paragraph --><\/p>\n<\/div>\n \n \n <!-- conversly to above, we need to not show the CTA here if it's the Head Section style -->\n  <\/div>\n<\/div>\n\n\n<div class=\"qff_disclaimer align wp-block-disclaimer content-section\">\n <div class=\"container mx-auto px-0 md:px-5\">\n <div class=\"qff_disclaimer__wrapper text-salt-box text-xs font-sofiapro border-t-2 border-spring-wood\">\n <p>Casey Family Programs consults with individuals and teams across the country to compile research, experiences, and insights about approaches that can safely reduce the need for foster care and ensure the well-being of children and families. We share this information broadly to help child welfare leaders and their partners tackle similar issues in their own communities. For questions about this resource, or if you have other child welfare information needs, please email <a href=\"mailto:kmresources@casey.org\">kmresources@casey.org<\/a>.<\/p>\n\n <\/div>\n <\/div>\n<\/div>\n\n\n\n<div id=\"footnotes\" class=\"wp-block-group\"><div class=\"wp-block-group__inner-container is-layout-constrained wp-block-group-is-layout-constrained\">\n<div style=\"height:2px\" aria-hidden=\"true\" class=\"wp-block-spacer\"><\/div>\n<\/div><\/div>\n\n\n<div class=\"content-section light fresh-text single wp-block-fresh-text backgrounds-and-margins-aware-block margin-top margin-bottom\">\n <div class=\"container mx-auto px-5\">\n\n \n \n <!-- The CTA is moved up next to the title when in the Head Section style -->\n \n  <div class=\"callout\"><script>\nvar 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ginput_container_radio'><ul class='gfield_radio' id='input_5_4'>\n\t\t\t<li class='gchoice gchoice_5_4_0'>\n\t\t\t\t<input name='input_4' type='radio' value='Yes'  id='choice_5_4_0'    \/>\n\t\t\t\t<label for='choice_5_4_0' id='label_5_4_0' class='gform-field-label gform-field-label--type-inline'>Yes<\/label>\n\t\t\t<\/li>\n\t\t\t<li class='gchoice gchoice_5_4_1'>\n\t\t\t\t<input name='input_4' type='radio' value='No'  id='choice_5_4_1'    \/>\n\t\t\t\t<label for='choice_5_4_1' id='label_5_4_1' class='gform-field-label gform-field-label--type-inline'>No<\/label>\n\t\t\t<\/li><\/ul><\/div><\/li><li id=\"field_5_9\" class=\"gfield gfield--type-radio gfield--type-choice gfield--width-full field_sublabel_below gfield--has-description field_description_above hidden_label field_validation_below gfield_visibility_visible gfield--choice-align-vertical\"  ><label class='gfield_label gform-field-label' ><span class='gform-field-label__text'>Select which best describes your 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